The Pediatric Cancer Data Commons (PCDC) works with leaders in in pediatric cancers to develop and apply uniform clinical data standards and facilitate the collection and linkage of data from many different sources and types. Using technology to address inefficiencies in clinical research operations and data aggregation and analysis, PCDC works to ensure that patients, physicians, and researchers have the best clinical research tools at their disposal.
PCDC files are available for download from the NCI EVS ftp site (https://evs.nci.nih.gov/ftp1/PCDC/) in excel spreadsheet format. Each PCDC project has a column with data specific to the project.
| Spreadsheet Column | Content Description |
|---|---|
| Action | Any change, deletion or addition from the previous version. |
| Project Name | The abbreviation of the individual project. | NCIt Code of Table | The NCIt Concept Code that is associated with the table/subset name. |
| PCDC Project | The abbreviation of the individual project. | PCDC Table PT | The preferred term of the table chosen by the PCDC working group members. Concepts belonging to a particular list of terms are linked by the table. |
| NCIt Concept Code | A unique, machine readable string that begins with a "C" and is followed by a series of digits; each concept in the NCIt has one concept code. |
| NCIt PT | The preferred term chosen by NCIt staff; the most unambiguous term for a particular concept. Each concept has one NCIt PT. |
| NCIt SY | Synonymous terms to the preferred term chosen by NCIt staff. |
| PCDC PT | The preferred term chosen by the PCDC working group members. |
| PCDC SY | A synonymous term chosen by PCDC. |
| NCIt Definition | The meaning of a concept as defined by NCIt. |
| PCDC Definition | The meaning of the concept as defined by the PCDC working group members. |
| Uberon Code | The Uberon code that maps to an anatomical concept. |
| Row | The identifier that will sort the rows into projects and tables with permissible values beneath the shaded variable rows. |
The database is reconciled the last Monday of every month; this is the database from which a production version is generated to correspond to the files posted on the ftp site. The version is noted in the tab of the worksheet. The files will be posted during the following two weeks. Additional terms may be suggested at the Term Suggestion page; please indicate PCDC as the project.
Previous versions of the PCDC Terminology files can be found on the following website (https://evs.nci.nih.gov/ftp1/PCDC/Archive)
Help requests on these files should go to NCIThesaurus@mail.nih.gov